Stroke Support Information

Providing support, hope, and encouragement for survivors, families and caregivers of patients who have suffered a stroke.

When:
First Tuesday of each month from 4-5pm

Where:
The University of Vermont Medical Center
Fanny Allen Campus
Rehab 1 Conference Room
790 College Parkway
Colchester, Vermont 05446

Contact:
Becky Louko, RPT
802-847-0142

This is a structured group to provide a forum for people to share their experiences in an atmosphere of encouragement, understanding, and support. The goal of this group is to meet specific emotional, educational and social needs of stroke survivors and their families.

Patient Resources

• Vocational Rehab- 1-866-879-6757
• Driver Rehab- 847-3140
• Aphasia group at UVM- Mike Cannizzaro 656-3861
• Individually Designed Exercise for Active Lifestyles (IDEAL) Susan Kasser, Ph.D 656-7742
• Frymoyer Community Health Resource Center, 802-847-8821

Free Publications

• Stroke Smart- 800-787-6537 www.stroke.org
• Stroke Connection- 888-478-7653 www.strokeassociation.org
• Neurology Now 800-422-2681 www.neurologynow.com

Stroke Research at The UVM Medical Center and the University of Vermont.

Stroke research is very important in developing new medications and treatments for stroke. Please refer to the government website that lists all research being done and the location of where the research is being done.

Here are a few clinical trials we are conduction here at The UVM Medical Center and the University of Vermont:

Outcomes and Practice Patterns for Hemispheric Infarcts with Malignant Edema

A Multicenter, Prospective Registry (OPHELIA) – Data collection study for stroke patients with large strokes that have potential for brain swelling to determine current clinical practice patterns for treatment of these strokes and basic guidelines in using hypertonic saline compared to decompressive surgery in such treatment.

• Investigator: Guillermo Linares, MD
• Coordinator: Paul Jarvis, MD
• Contact for more information: 802-656-9206

Mild and Rapidly Improving Stroke Study (MaRISS)

Data collection study for patients with mild strokes or strokes with symptoms that rapidly improve before a treatment decision is made to determine differences in long-term functional outcome. Patient involvement beyond regular stroke care includes a telephone interview with the study team at 30 days and 90 days after the patient's stroke.

• Investigator: Christopher Commichau, MD
• Coordinator: Paul Jarvis, MD
• Contact for more information: 802-656-9206

CSPC sponsored NBP study

A phase II randomized, controlled, double-blind clinical drug study to evaluate the efficacy of n-butylphthalide (NBP), a compound derived from celery root, as an add-on drug in stroke treatment as compared to a placebo (inactive compound. Eligible patients first receive either placebo or the study drug as a soft-gel capsule within 24 hours of a stroke and take the capsules twice a day for 30 days, with additional follow-up through 90 days to evaluate safety/efficacy of the drug. The study also involves additional blood draws during the patient's initial hospitalization to study the metabolism of the drug.

• Investigator: Guillermo Linares, MD
• Coordinator: Paul Jarvis, MD
• Contact for more information: 802-656-9206

Stroke-Related Early Tracheostomy versus Prolonged Orotracheal Intubation in Neurocritical Care Trial 2 (SETPOINT2)

Acute care research study comparing effectiveness and long-term outcome in stroke patients needing mechanical ventilation to help with breathing; the study aims to compare those who receive standard therapy of remaining on mechanical ventilation for an extended period of time and then receiving a tracheostomy procedure if felt needed compared to proceeding with a tracheostomy procedure within 5 days of the decision to use mechanical ventilation. Functional outcome is assessed by telephone interview with the patient and patient's caregiver (as applicable) at 90 days after the patient's stroke.

• Investigator: Evadne Marcolini, MD
• Coordinator: Paul Jarvis, MD
• Contact for more information: 802-656-9206

Stroke Patients in the Health Network of UVM Data Registry (SPIHN UVM

Data registry that any stroke patient who receives care at UVM Medical Center may agree to be a part of; general clinical data on the stroke hospitalization, such as clinical exam and lab testing results, as well as data from stroke follow-up appointments, are collected and stored in a coded format with no patient identifiers to allow easier access to data for new local investigator-initiated research and quality improvement projects.

• Investigator: Guillermo Linares, MD
• Coordinator: Paul Jarvis, MD
• Contact for more information: 802-656-9206